What’s Best for a Person with a Disability: ABLE Account or Trust?

ABLE accounts, which were created in 2014 by the Achieving a Better Life Experience Act, allow people with disabilities or their families to save while the account owner remains on government assistance.  Since they became available thousands of people across the country have set them up.

Here we’ve updated an earlier blog that compared ABLE Account to Special Needs Trusts.

In very broad terms, ABLE Accounts are similar to certain types of Special Needs Trusts (SNTs). They both aim to allow an individual with special needs to save money in a tax-free environment and remain qualified for government benefits from Social Security and Medicaid.

Here are some of the differences between an ABLE Account and a SNT which you should keep in mind as you prepare your child for an independent financial future.

AGE AT THE TIME OF DISABILITY. With an ABLE Account the individual must have become blind or disabled before the age of 26. A SNT can be established regardless of when an individual became disabled.

WHO CAN ESTABLISH THE TRUST? A person with a disability can set up his/her own ABLE Account; he/she can also set up a SNT working with an attorney.

COST TO ESTABLISH THE TRUST. It is relatively easy and inexpensive to set up an ABLE Account, and there is no minimum initial deposit required. Setting up a SNT is more expensive and complicated, in part because there are several types of SNTs.  (See box.)

SOURCE OF FUNDING. In both cases, anyone can contribute money to the trust/account. With certain SNTs the beneficiary can have his or her salary deposited into the trust. However, a trust can be funded with property, stocks or other assets, but the ABLE Account is essentially a savings account with a cap.

TAX-FREE INCOME: The investment income earned on ABLE Accounts is not taxed; withdrawals are also tax fee as long they are used for the individual’s qualified expenses related to the disability such as health, education, housing, transportation, training, assistive technology, personal support, related activities and expenses. The tax status of investment income and withdrawals from SNTs vary according to the type of SNT and how the funds are used, which is why it is important to work with a qualified attorney when you set up a trust for your loved one.

TRUST INCOME LIMITS. An ABLE Account has an annual contribution limit of $15,000. While this limit may seem reasonable today, it prevents you from leaving your child with special needs certain assets when you die including a large lump-sum of money. ABLE Accounts also have an over-time limit which is the same as the state limit for education-related 529 savings accounts ($350,000 in Delaware). But, for individuals receiving SSI, only the first $100,000 is exempt from the SSI individual resource limit. If the trust exceeds the $100,000, the beneficiary will lose any SSI support until the amount of money in the trust drops below the limit and notification is made. (Medicaid benefits are not affected by the amount in the account.)

There are no contribution limits for SNTs. If the individual receives a legal settlement, a gift from an estate, regular contributions from grandparents or others the funds – all can be deposited in the SNT tax-free.

LIMITS ON WHAT THE FUNDS ARE USED FOR:  Withdrawals from an ABLE Account are tax free if the funds are used to pay for any of the "qualified disability expenses" listed above. Certain SNTs have greater flexibility on what the money can pay for and SNT funds are not available to creditors or for paying judgments.

PAYBACK PROVISION. The ABLE Act has a Medicaid payback provision so that when the beneficiary dies, the government can request that any funds remaining in the ABLE Account be used to pay back the benefits your loved one received. Medicaid is repaid before other family members inherit whatever funds remain in the trust so the entire account may be depleted. While some types of SNTs include a payback requirement, it is possible to set up a SNT so there is no payback; funds remaining in the SNT can be distributed to loved ones when the beneficiary dies.

REPORTING REQUIREMENTS.  With an ABLE Account, an electronic statement showing what was spent from the account and the account balance must be sent to the Social Security Administration every month. These types of statements are not required with a SNT.  

INDEPENDENCE. A SNT requires that a trustee be appointed to manage the trust, so the beneficiary must ‘request’ funds from the trustee. If an individual with special needs is not able to manage her/her finances, the peace of mind that comes with a trust administrator is welcome for aging parents. However, the trustee can deny funds to the beneficiary which could prove frustrating to your child from time to time. With an ABLE Account, the person with the special needs can manage the account – the value of this independence is hard to measure.

Helping a child with special needs prepare to live independently can be joyful as well as challenging. Financial issues are particularly worrisome and sometimes the choices are confusing. We’ve tried to give highlights here of what you should know about ABLE Accounts and special needs trusts, but we highly recommend that you seek help from a professional as you consider your options. If used alone or incorrectly the ABLE Act can be devastating to your loved one. A poorly designed SNT can actually result in the beneficiary being disqualified for benefits.

A qualified professional can help you avoid the pitfalls of both types of accounts and can help you create a comprehensive, multi-generational plan which should help you put some of your worries about your child’s future to rest.